“Patient involvement and data protection in medicine and medical research and related Ethical, Legal and Social Issues (ELSI)”

Objectives of the online conference:

There is a shift in the field of medicine today towards patient-centred approaches. This shift gives rise to issues concerning data protection, especially when personal data is involved and when this data needs to be shared among different actors in the healthcare sector (clinics, researchers, healthcare facilities, etc). This new trend in medicine also makes it necessary to re-define public and patient involvement (PPI). In order to implement new opportunities in the medical field, new stakeholders need to be involved, including policymakers, lawmakers, lawyers and researchers from social sciences or ethics who are able to address the Ethical, Legal and Social issues (ELSI) associated with new medical applications such as genomic technologies.
These changes and the accompanying developments and issues are highly relevant in both Germany and Japan. Research communities are already partly connected, but closer and more extensive dialogue and cooperation is necessary.

Registration:

Please click on the “Register” button above to register for the lecture, the panel discussion (YouTube live stream), and the group discussion.

Registration for the group discussion (online meeting tool) :
Group discussions specifically welcome early career researchers.
The language for the discussions is English (with a translater present to support).
Please state your own research area(s)/interests on the registration form. We will assign each participant to one of the interdisciplinary discussion groups according to their respective research area/research interest.
You will receive a separate invitation to your assigned group along with your login information. (*The registration for the group discussion has already closed)